Pompe Disease - Symptoms, Causes, Treatment | NORD
Pompe Disease - Symptoms, Causes, Treatment | NORD
3 weeks ago
rarediseases.org
Charlotte | KINE | DRAINAGE LYMPHATIQUE | BRUXELLES on Instagram: "🎄 JOUR 1 – On ouvre la voie On démarre ce calendrier lymphatique de l’avent ensemble, et aujourd’hui je te montre mon indispensable : La stimulation ganglionnaire ✨ C’est le geste qui dit à ton corps : « Ok, on peut circuler ! » Tu peux la faire : • le matin pour réveiller ton corps • le soir pour dégonfler • entre deux rendez-vous • debout, assise ou… dans ton canapé (comme moi 😅) Le plus important, ce n’est pas quand tu la fa
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Tarabishi, a 30-year-old man from Arlington, Texas who lived with the rare genetic condition Pompe disease and depended on his father for all daily care, has died after being hospitalized for complications related to his illness. His father, Maher Tarabishi, was taken into custody by U.S. Immigration and Customs Enforcement (ICE) on October 28 while attending a routine check-in that he had long complied with. Wael’s family and advocates say his health deteriorated after Maher’s detention and the
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